Eddie has virtually no expressive language—basically he can’t speak. He can hear just fine, but his receptive language skills are weak too, so to warn him that today instead of going to the train station to watch trains as we usually do on a Thursday, I had to come up with a visual symbol he’d understand. I got up at 5:00 a.m. I printed out some photos I took yesterday at the hospital, then trimmed them and I stuck them onto his timetable, right after the symbol for eat and the symbol for Publix and yogurt. I wrote a social script that explained that today we had to go to the hospital and we would see Babcia, but that she would be in bed and she would not be able to talk with us, and that Babcia was okay and Eddie is okay and everything is going to be okay.

I’m aware that much of the reassurance in that script is a lie. I’m not naive—Babcia is ninety-five years old, the chances of her walking out of the hospital this time are slim—she’s probably not okay at all. But that’s what Eddie needed to hear, so that’s what I told him. I sat him down with the schedule and the script and I ran through both until Eddie opened his iPad and the communications program he uses—an Augmentative and Alternative Communication app, AAC for short; it’s a simple but life-changing concept—each screen displays a series of images that represent the words Eddie can’t say. By pressing on those images, Eddie is able to find a voice. This morning, he looked down at the screen for a moment, then he pressed on the Yes button, so I knew he understood what he’d read, at least to some degree.

Everything was fine until we arrived here, and the packaging had changed. In the time that’s passed since, concerned staff and shoppers have come and gone.

“Can we help, ma’am?” they asked at first, and I shook my head, explained his autism diagnosis and let them go on their merry way. Then the offers of help became more insistent. “Can we carry him out to your car for you, ma’am?” So then I explained that he doesn’t really like to be touched at the best of times, but if a bunch of strangers touched him, the situation would get worse. I could see from the expression on their faces that they doubted things could get any worse, but not so much that they dared risk it.

Then a woman came past with an identically dressed set of perfectly behaved, no doubt neurotypical children sitting up high in her cart. As she navigated her cart around my out-of-control son, I heard one of the children ask her what was wrong with him, and she muttered, “He just needs a good spankin’, darlin’.”

Sure, I thought. He just needs a spankin’. That’ll teach him how to deal with sensory overload and learn to speak. Maybe if I spank him, he’ll use the toilet spontaneously and I can ditch the obsessively regimented routine I use to prevent his incontinence. Such an easy solution... Why didn’t I think of spanking him seven years ago? But just as my temper started to simmer she glanced at me, and I met her gaze before she looked away. I caught a hint of pity in her eyes, and there was no mistaking the fear. The woman blushed, averted her gaze and that leisurely journey with her children in the cart became a veritable sprint to the next aisle.

People say things like that because it makes them feel better in what is undoubtedly a very awkward situation. I don’t blame her—I kind of envy her. I wish I could be that self-righteous, but seven years of parenting Edison Michaels has taught me nothing if not humility. I’m doing the best I can, it’s usually not good enough and that’s just the way it is.

The manager came by a few minutes ago.

“Ma’am, we have to do something. He’s done hundreds of dollars’ worth of damage to my stock and now the other shoppers are getting upset.”

“I’m all ears,” I said, and I shrugged. “What do you propose?”

“Can we call the paramedics? It’s a medical crisis, right?”

“What do you think they’re going to do? Sedate him?”

His eyes brightened. “Can they do that?”

I scowled at him, and his face fell again. We sat in uncomfortable silence for a moment, then I sighed as if he’d convinced me.

“You call the paramedics, then,” I said, but the knowing smile I gave him must have scared him just a bit, because he stepped away from me. “Let’s just see how Eddie copes with a paramedic visit. I’m sure the blaring sirens and the uniforms and more strangers can’t make things much worse.” I paused, then I looked at him innocently. “Right?”

The manager walked away muttering to himself, but he must have thought twice about the paramedics because I’ve yet to hear sirens. Instead, there are visibly uncomfortable store assistants standing at either end of the aisle quietly explaining the situation to shoppers and offering to pick out any products they require to save them walking near my noisy, awkward son.

As for me, I’m sitting on the floor beside him now. I want to be stoic and I want to be calm, but I’m sobbing intermittently, because no matter how many times this happens, it’s utterly humiliating. I’ve tried everything I can to defuse this situation and my every attempt has failed. This will only end when Eddie tires himself out.

Really, I should have known better than to risk bringing him into a grocery store today. I don’t think he fully understands what this hospital visit means, but he knows something is off. Not for the first time, I wish he could handle a full-time school placement, instead of the two-day-a-week schedule we’ve had to settle for. If only I could have dropped him off at school today and come here alone, or even if I could have convinced my husband, Wade, to stay home from work with Eddie.

Wade had meetings. He always has meetings, especially when not having meetings would mean he would have to be alone with Edison.

“Excuse me.”

I look up wearily, expecting to find another staff member has come to offer “assistance.” Instead, it is an elderly woman—a frail woman, with kind gray eyes and a startling blue hue to her hair. Blue rinse aside, she looks a lot like my Babcia—short and skinny, but purposefully styled. This woman is carrying a flashy handbag and she’s dressed from head to toe in explosive floral prints, all the way down to her fabric Mary Janes, which are patterned with gerberas. Babcia would wear those shoes too. Even now, well into her nineties, Babcia is still generally dressed in clothes featuring crazy flowers or outlandish lace. I have a feeling if the two women met, they’d be instant friends. I feel a pinch in my chest at the recognition, and impatience sweeps over me.

Hurry up, Eddie. We have to hurry. Babcia is sick and we need to get to the hospital.

The woman offers me a gentle smile and opens her handbag conspiratorially.

“Do you think something in here could help?” She withdraws from her bag a collection of little trinkets—a red balloon, a blue lollipop, a tiny wooden doll and a small wooden dreidel. The woman crouches beside me, then drops them all onto the floor.

I’ve already tried distraction so I know this isn’t going to work, but the kindness in the woman’s gaze almost brings me to tears anyway. When I look into her eyes, I see empathy and understanding—but not a hint of pity. It’s a beautiful and unfortunately rare thing to have someone understand my situation instead of judging it.